APP Master Sessions-Brain Tumor Support and Survivorship Session

Video Transcription

Video Summary

In this video, nurse Mary Lovely speaks about her experience working with brain tumor patients for 20 to 30 years. She discusses her background in neurology and her passion for providing symptom management and quality of life support to patients and families. Lovely emphasizes the importance of a patient-centric approach and the need for social, emotional, spiritual, and everyday support for brain tumor patients. She highlights the cognitive changes and persistent symptoms experienced by these patients and offers suggestions for managing fatigue, memory issues, and distress. Lovely also discusses the need for assessment, personalized care plans, and the provision of resources, such as support groups, educational materials, and online platforms. She mentions specific organizations that can provide assistance, including Cancer Care, the Brain Tumor Network, and the American Brain Tumor Association. Lovely concludes by emphasizing the value of connection and community in supporting brain tumor patients and their families, offering examples such as caregiver programs, survivorship clinics, and the Milton Marks Family Camp.

Keywords

nurse Mary Lovely

brain tumor patients

neurology

symptom management

quality of life support

patient-centric approach

cognitive changes

support groups

resources