Science of Neurosurgical Practice-Designing a Registry

Video Transcription

Video Summary

The transcript of the video is a presentation by Tony Asher on designing clinical registries. Asher starts by discussing the value and uses of registries in the medical field, focusing on the design and mechanics of putting together a registry. He mentions the importance of stakeholder involvement and the need for clear definitions of clinical conditions and value. Asher then introduces the National Neurosurgery Quality Outcomes Database (N2QOD) as an example of a registry and explains its purpose, structure, and data collection process. He discusses the advantages and disadvantages of registry formats, including the ability to capture real-world practice and patient-reported outcomes. Asher highlights the potential uses of registries in quality improvement, shared decision-making, and resource utilization. He presents some data from the N2QOD, showing the variability in patient outcomes and the need for improvement in certain areas. Finally, Asher outlines future directions for registries, including embedding them in routine practice, integrating with other data collection requirements, and translating data into meaningful quality improvement efforts. The presentation provides insights into the design and implementation of clinical registries and highlights the opportunities and challenges they present in improving healthcare outcomes.

Asset Subtitle

Presented by Anthony L. Asher, MD, FAANS

Keywords

clinical registries

designing

stakeholder involvement

data collection process

patient-reported outcomes

quality improvement

patient outcomes

future directions

data integration